SMA (Spinal Muscular Atrophy) Who does it affect & how WOWTV and Listen UP are supporting critical research with a Loftan bracelet!

SMA (Spinal Muscular Atrophy) Who does it affect & how WOWTV and Listen UP are supporting critical research with a Loftan bracelet!

wow sma banner

Today, Margaret Wallis-Duffy from WOW Living TV welcomed Theresa Van Fraasen, Fundraising Coordinator at Families of SMA Canada and Jennifer Jahnke, parent of a great little guy named Jack with SMA (Spinal Muscular Atrophy) into the Listen UP studios to chat about the often-fatal SMA, who it affects, and how close to a cure they are!  SMA is the NUMBER genetic killer of children under the age of 2.
Some amazing charitable initiatives are happening soon, including a gorgeous semi-precious stone bracelet designed by Loftan with 20% of the proceeds going to SMA research right here in Canada!  Wallis For Wellness commissioned these quality yet affordable ($39 or $49) bracelets to help charities provide something of value, to encourage a different way of giving.  In lieu of flowers or other gifts for others, we hope that many people will choose this bracelet to help fund SMA research, and give a memorable keepsake for a birthday or anniversary!

Those affected with SMA have incredible daily challenges, including purchasing expensive medical equipment to improve quality of life.  One seemingly simple way Jack’s quality of life could be improved was to have a bike. Because of his symptoms, Jack was unable to ride a traditional bike, and the cost of a modified bike was exorbitant, thankfully the Rotary club stepped up and purchased the bike on their behalf.

jack bike

jack rockstar

 

 

 

 

 

 

 

 

 

A wonderful fundraiser for SMA research called the Rebecca Run is happening Saturday, July 5, 2014 in Newmarket, ON at Fairy Lake.  Through your support and efforts we raised over $2.2 million for Families of Spinal Muscular Atrophy Canada to date. Together, we will find a cure for SMA.  Here’s a picture of Team Jack from last year!  team jack

BIG THANKS to Esso & Imperial Oil for being the title sponsor! esso

To learn more about SMA or connect with other families affected by SMA, find them on the web HERE: http://www.curesma.ca/

or Facebook HERE: https://www.facebook.com/pages/Families-of-SMA-Canada-Society/248082318551274?fref=ts

Purchase a Wallis For Wellness Loftan Bracelets to support SMA research HERE: https://margwallis.lofttan.com/lofttan-collection/wow-bracelets.html

loftan bracelet

 

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